Category: death
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One week of widowhood
It’s been one week since we said goodbye to Ramón, and it’s been more than 14 weeks since I said farewell to the version of Ramón I’d known since December 2011. In many ways, I’ve been grieving since April, but the sorrow has taken a different shape now, knowing that the possibility of recovery no…
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Day ???
Many of you have followed our story and its constant ups and downs, particularly since Ramón’s chemo/radiation/transplant complication-induced cardiac arrest on April 19, 2020. Though it felt like we’d finally settled into an “up” after a tumultuous three months, Ramón died yesterday at 10:52 a.m. Things were going well [enough] until suddenly they weren’t. A…
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One sunset at a time
It’s our third night in the hospital, and we just witnessed the best sunset so far—a Fight Like Mike sunset. Throughout Ramón’s cancer treatment, I’ve shared the story of our friends Lindsey and Mike and their efforts to Share Love, That’s All. Last Sunday, after valiantly combating leukemia for four years, Mike peacefully passed away…
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Peace out, 2019
The time has finally come to say goodbye to one of the best, most awful years of my life. I got a cold on Thanksgiving (so thankful), which spiraled into quite a mess. After five days in the hospital—as the patient this time—I am at home on day 20 of IV antibiotics. So, as the…
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The struggle has ended
After a 22-year battle with cystic fibrosis, my friend Darcey passed away on Wednesday, August 3. I first met her when I was an intern at the Make-A-Wish Foundation in 2006. I was preparing some wish stories to use in marketing pieces, and I came across a girl with cystic fibrosis who had recently been…
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Walking the path
This photograph will be forever etched into my mind and my soul. The year was 1998, and I was at the annual cystic fibrosis camp, Camp Wak-N-Hak. As a child, camp was the one place where I was surrounded by people who understood what my life was like. For one week each year, I felt…