Category: Uncategorized

  • Trikafta: One Year Later

    Trikafta: One Year Later

    On December 13, 2023, I wrote this in my journal: What if I’m being killed by a miracle? The “miracle” being Trikafta, an innovative cystic fibrosis drug that I’d been on for two years. Despite improvements to my physical health, it was extinguishing my will to live. For a portion of the time I was…

  • Ho-ho-hospital

    Ho-ho-hospital

    I just spent my seventh night in the hospital. I went to sleep when my IV antibiotic finished just after 11:00 p.m. Then the nurse came in to draw blood at midnight. Then the tech came in to get my vital signs at 1:00 a.m. Then the nurse came in to hook me up to…

  • The Mystery of the Coatrack

    The Mystery of the Coatrack

    Ramón and I returned home to our condo one night after playing trivia. When Ramón tried to push the door open, he was met with resistance, as though someone was barricaded inside. “Did someone break in?” I whispered to Ramón. “I don’t know,” he answered, then gave the door a shove.

  • Now serving anxiety

    Now serving anxiety

    Anxiety has been all up in my business this week. My pulmonologist called last Friday to chat about some medical stuff. If you’re a chronic patient, you’re probably familiar with the game where something catches the doctor’s attention enough to mention it, but you don’t know how far the curiosity will go. Will follow-up tests…