Search results for: “label/back”
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Trikafta: One Year Later
On December 13, 2023, I wrote this in my journal: What if I’m being killed by a miracle? The “miracle” being Trikafta, an innovative cystic fibrosis drug that I’d been on for two years. Despite improvements to my physical health, it was extinguishing my will to live. For a portion of the time I was…
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Happy/Sad New Year!
We’re almost a week into the new year, and I’m ready for a do-over. In some ways, I fulfilled my intention to be simple and deliberate. I made a lengthy to-do list for the week and accomplished most of the tasks. I’m five days into a 24-day Pilates challenge. I’ve already finished reading my first…
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Grief: A hard pill to swallow
Grief is very real. It’s exhausting, it’s sneaky, and it’s unpredictable. And it spans to all areas of loss—actual, perceived, or even anticipated loss. Growing up with cystic fibrosis and an overactive mind, I’ve been in stages of grief throughout my life. I grieve the thought of my own mortality. I grieve the loss of…
