GIRL DREW
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Decisions, Decisions
“I make good decisions,” I announced yesterday, surprised as the words left my mouth. I often categorize myself as indecisive, so I was taken aback by my own declaration. When I truly analyze the past, few bad decisions come to mind—except purchasing rollerblades from Amazon. I don’t think I make choices that leave people asking,…
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2.0.2.6
Welcome to 2026! If you know me, you know I loooove me some goal setting, some personal development, some psychoanalysis. The feeling of a fresh start excites me. Many nights (since coming off Trikafta), I go to sleep giddy about waking up the next morning—excited about what the day will hold. I love sleeping, but…
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I’ll be home for Christmas
‘Twas the night before Christmas when I finally broke freeTo finish healing at home with the help of IVs;I plopped on the couch, dogs wrapped in my legs,And waited for Santa to deliver my meds. Well. That was the least Christmassy Christmas ever, but I’m okay with it. My virus-like symptoms began in mid November,…
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Ho-ho-hospital
I just spent my seventh night in the hospital. I went to sleep when my IV antibiotic finished just after 11:00 p.m. Then the nurse came in to draw blood at midnight. Then the tech came in to get my vital signs at 1:00 a.m. Then the nurse came in to hook me up to…
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Marry Christmas
A decade ago today, I woke up in a cabin in Blue Ridge, Georgia, ready to become Ramón’s wife. Typing “Ramón’s wife” still feels odd because, in many ways, it’s as though I never got to fulfill that role. It’s also weird because I tend to avoid titles, meaning I’d never really called him my…
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Let it slow
I’ve been meaning to post for the last several weeks, and I’m finally here. I was mostly busy judging the writing ideas that came to mind and, ya know, getting in my own way—something I think most of us can relate to. I’ve also been pretty sick for the past several weeks.
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You heard it here
Guess who was on a podcast?! Me! I recently had the opportunity to be a guest on Pam Baker’s podcast, The Lost Love Stories. Pam is a legend in the CF community. I feel cheesy saying that, like I’m trying to puff her up, but I mean it. Pam has two sons with CF, both…
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Doggone it
Yesterday marked one month without Noodle. I felt her absence strongly on Tuesday when I returned home from a trip. Often, reuniting with the dogs is the highlight of coming home from vacation. But on a shuttle at the airport, it struck me that Noodle wouldn’t be part of the welcoming committee for the first…
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Docu-Drama
One night last week, I decided to watch a documentary while I worked on a jigsaw puzzle. If that sounds nerdy, I agree—and I own every bit of it. I browsed titles, looking for one that sounded inspiring. I love all types of docs, but I wanted a boost that night. I landed on one…
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Pole dancing
A haiku:Drip drip drip all dayAlways dancing with the polePoison in my veins The countdown is on! I finish up IV antibiotics tomorrow, and right now it feels like I’ve never wanted something so badly in my life. Mainly I’m eager to get back to my normal sleep schedule—and ditch these side effects that make…
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Adieu, Noodle Lou
Growing up, I wanted a dog, but I feared the yet-to-be-acquired dog’s death. I suspect that’s not typical kid behavior, but my CF diagnosis instilled in me a death obsession. I grieved every loss I could dream up—even losses of relationships that didn’t yet exist. In May 2012, with Ramón’s encouragement, I decided I was…
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Week 4: Simple September
Another week of Simple September has come and gone. Of all the weeks this month, this was the least simple, but hey. A lot fell beyond the limits of my control, and I handled it with more grace than I anticipated. Although the week’s events weren’t particularly simple, I didn’t overcomplicate them—which is all I…
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Week 3: Simple September
I’m here with another Simple September recap. My biggest victory over the past week has been following my gut. Because of this, I was less sterotypically productive (i.e., working hard, making money) and a lot more that-book-is-really-calling-to-me-and-I-shall-answer productive (i.e., soul-level fulfillment). Some bigger things are happening this week, so check Instagram for the daily recap.…
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Week 2: Simple September
Another week of Simple September has come and gone! Most nights I found myself scrambling to think of something to post, which isn’t *quite* what I had in mind when I developed Simple September (#StressedAboutPostingSeptember?). So, my goal for this week is to be more mindful of my surroundings throughout the day. In other words,…
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Week 1: Simple September
Here’s what went down during the first week of Simple September. Highlights include fun socks, cozy naps, and threats of hospitalization. Dun dun dun… 💜Keep up daily on Instagram!💜